Dec 172011
 

Original Text of an E-mail from Douglas to Family/Friends

Very rough night and morning.  Alexandria began to have serious respiratory and cardiac distress starting around 1am, episodes lasting about a 15 minutes.  This happened about every two hours during the night.  She is able to feed via bottle.  We attempted tube feeding last night and that did not go well, it was too stressful for her body to handle and her heart dropped to 40bpm.   Her episodes began to get more frequent, but now are beginning to lengthen out instead of becoming several small episodes.  Her last episode lasted an hour.  We are praying for comfort, she does not seem to be in any pain.  We sing to her.  We read to her.  We constantly tell her how much we love her.

 Posted by on December 17, 2011 at 11:04 am

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