Jessica, Alexandria (Smiling!), and Dawn
Alexandria will turn 1 month old this afternoon. The last few days there have been some changes. Her respiration rate has been accelerated a good amount of the time. I noticed Saturday that her hands seemed colder to me, which can be a sign her body is focusing on her vital organs blood to the heart/brain/lungs rather than her extremities. Last night around 11pm she had a cardiac episode, her heart rate dropped to the 60s for a few moments. We checked her sensors, they were all in place, we didn’t adjust them and she didn’t have a recurring issue. Dawn and Jessica from Hospice came by this afternoon and Jessica confirmed that she “looked different”. Jessica feels she looks paler, and after listening to her heart she does notice that there is some bradycardia (slowing heart rate) and a little arrhythmia (irregular heart beat).
So…her heart is slowing, it’s getting tired…she’s not able to pump blood throughout her body like she was able too, and her breathing is increasing to try and help get more oxygen into her bloodstream.
We’re going to have her 1 month birthday party today, have some cake and ice cream. I so wanted her to see her 1 year birthday. It seems so unlikely now. It feels like she is slipping away. I so desperately do not want to lose her. Please continue to pray for her.
She just looks so perfect, it’s so hard to accept.
