Douglas

 

A few weeks ago I began to consider what to do for Mother’s Day for Kimberly.  I know many families go out to eat on Mother’s Day, but the thought of being surrounded by many other mothers with daughters did not seem like a good idea.  What to do…  Last year I bought Kimberly a peanut butter cheesecake from The Cheesecake Factory for one of her birthday gifts.  She loved it, but when I went looking the cost to ship them was now astronomical (probably because of the holiday).  The cheesecake would have cost upwards of $70.  I didn’t want to break the bank, but she loved that cheesecake…  So I researched and found a recipe for the exact cheesecake she loved.  Bet I could make it for less then $70…  It took 4 days to build, 8 layers of peanutbuttery chocolate cheesecake goodness.  I made cards with the boys, carefully helping Aden spell out Happy Mother’s Day.  He worked so hard on it.  Gabriel created a few pictures and stamped a bunch of hearts.  During dinner he looked at Kim and said, “Don’t look in the cabinet, we made you cards and hid them there.”   :)

On Friday, our friend Joy from across the street came by as the boys and I were playing out in the front yard…  “What are you doing for mothers day?”  Not much.  I told her about the cheesecake, but that’d probably stay home.  She hits me with this idea of getting some neighbors together for a mother’s day BBQ.  “Sure, why not, sounds good.”  We’ve done that before, and having all the kids run around playing together is always fun.  Before we knew it just about everyone was going to come, almost 40 people, with food, wine, quite a party…  We setup a ton of tables in my driveway and I grilled hot dogs and hamburgers, everyone brought a dish…  What an incredible time.  We could have been stuck inside, focusing on what was missing, on Alexandria not being here… but instead were given a wonderful day of food, of thanks, with friends.  It was a perfect, warm, sunny day.  I couldn’t have asked for a better group of people to have as my neighborhood, God has really blessed us with a fantastic place to raise the kids.

 

 

 

There were very few times when Alexandria was completely wide awake.  Most of the time that happened in the middle of the night, when I was watch, and no one was around to witness with me.  I’d took some video on occasion.  Below was a morning in early January, I’d planned on posting this to facebook but when I did facebook choked.  I didn’t have a youtube account yet, and this website wasn’t even a thought in my head until a week later…. so it was lost until today.

As those of you know, there is a couple we’ve been praying for who’ve been given the miracle of having their daughter, Nora, with them.  I read through their posts and I remember the pain, the fear, and the absolute joy… how intermingled they can be and how stressful it was.  You can go through an entire night of blazing pulsox alarms, exhausted, and then get a few moments like those below.  Wide-eyed, looking around, engaged, bring you so close to God. 

Tomorrow will be the third month anniversary of Alexandria’s death.  I spent a good amount of time crying today, even though it was my birthday.   I didn’t want to celebrate, but knew how important it was for the kids and how excited they were.   I did the due diligence.   I wanted so badly to have her here today, and am so thankful that we had so many wonderful days with her.  God blessed us with such a wonderful journey, and I see his work in Aleisa, William, and Nora… but it is difficult to understand, to accept, why this happens, and even moreso to move on.  I feel trapped in my grief. 

I love you Alexandria, and daddy misses you so very much.

Video from January 6th, 2012

 

It has taken me a long time to finally publish what happened the day of Alexandria’s funeral.  I kept putting off going back, reviewing it, finding the pictures that went with it.  I didn’t want to close that door.  We had my brother-in-law take pictures for Gabriel’s sake.  We wanted to make sure he remembered that she didn’t disappear, that she died, that it was final, that we did what is done after death.  Other pictures were for us…  One of the things our councilor has suggested is giving Gabriel a keepsake box, or a photo album that he can make himself, so he can go back and look at these things whenever he wants.  He’s been very excited by the idea and Kim and he started making an album today.  I guess that made me feel it was time, time to finish that week’s posts off.  To remember, but close it.

So I finished this post today, (4th Day After) Her Funeral, and thank everyone who helped make the day the celebration it was.

 

 

Aleisa and William’s daughter Nora Rose was born a little more then a week ago and a similar miracle occurred during her birth.  Unfortunately, like Alexandria, Nora has had some blue spells.  This evening Nora had a fairly bad one.  I remember the terror, the fear, when Alexandria would have an episode and then snap back to life.  I wish I had words of comfort for them, I wish I could make it all better.  I feel helpless, and now know how others must have felt around us.  It’s so much harder to be the parent, but I feel the agony of watching what they are going through and not being able to help.  They are wonderful parents, with a faith and love unmatched.  Dear Lord, please carry them, hold all of them up this evening.

 
Alexandria, Gabriel, 12/22/2011

Gabriel making sure Alexandria can see him. (12/22/2011)

One of our greatest concerns before Alexandria was born was how Gabriel was going to handle everything.  He knew Kimberly was pregnant, he’d been told that there was a baby in her belly, he’d seen Ethan’s arrival less then a year prior.  He was so excited that we were having a baby, even more-so when he found out it was a girl.  He’s quite enamored with the girls in the neighborhood, I think because they aren’t as rough and tumble as his brothers…  and now a sister was on the way.

He was going to remember her.

He was going to have feelings for her.

He was going to have to, at such a tender age, come to terms with her death.

While she was here he loved her as deeply as any of us.  He held her, he sung to her, he kissed her.  “I’m so excited she came out of mommy’s tummy!” he would say.  He still says that, but it is usually prefaced with “I miss baby Alex.”  After she passed he told us that she died, often.  He was trying to understand it, trying to connect the pain he felt with the reality of the loss he was experiencing.  No matter how often he brings it up we’re careful, we listen, we let him express himself, we talk to him about it.

Then he stopped.  He stopped mentioning her, he stopped telling us… until earlier this week.  Gabriel began making up songs.  Mostly to a tune that he knew, Mary had a little lamb, London Bridges…  But within each song he’d sneak her into it.  He’d mention her death.  This evening we sat down to dinner and we take turns saying grace.  Grace usually consists of a rendition of “Come Lord Jesus be our guest and let these gifts to us be blessed.”, a standard Lutheran grace my family has used long before I was born.  He announced that tonight was his turn and he was going to tell us a prayer that we’d never heard before.

Gabriel: Come Lord Jesus, we love you, we love mommy, and daddy, and sister, and everyone, and baby Alex died, and thanks for gifts…

Ethan: AMEN!

Gabriel:  … and love everyone and be our guest…

I looked up momentarily when Ethan screamed out Amen.  Never heard him say it so clearly, much less as loud, before.  Kim almost lost it muffling a giggle as best she could, the timing was just perfect.  We told him it was a wonderful prayer.  A light touch of humor from Ethan, against a sobering moment with Gabriel.  He’s finding ways to express his grief, his confusion, his pain.  He’s talking about her more often now, and Kimberly and I are talking with people to help us help him.  Please pray for Gabriel, pray for his comfort, and that is given the grace and understanding that has eluded me.

Gabriel holding Alexandria

Gabriel holding Alexandria

 

Please pray for our friends Aleisa, William, and little Nora.  Today will be Nora’s birthday and she has Edward’s Syndrome.  She’s being born to incredible parents, God has given them a wonderful faith and strength and I pray he gives them so much time as well. 

http://iwillcarryyou.wordpress.com/

God Bless,

Douglas

 

Kim and I sat down with the Stephen Ministries chapter of our church on Thursday.   This is a group of trained individuals that meet with people  in need, usually once a week, to listen and help.  They meet one-on-one with people, but in this case Kim and I met with the entire group.  They were interested in learning from us, about our grief… what people did that was good for us, what people did that was bad.  I wasn’t planning on doing much talking, I even told Kimberly before we went that it was my plan to sit back and listen to her talk.  She’s better at communicating than I am, at least from my perspective… and I was somewhat fearful that I would break down when discussing Alexandria. 

I rambled.  Probably much like I do on this blog.  I’m sure I dominated the conversation.  Any opportunity to talk about Alexandria… guess I just can’t pass that up.  But who could?   I hope that they were able to take away some things that will help others.   They all were genuinely caring people, and should anyone in our church need them I’d highly recommend speaking with Pastor.

It’s 2am and I’m fighting sleep.  I have this irrational fear that if I fall asleep I’ll forget something about Alexandria.  Isn’t that the oddest thing?

Dressing Alexandria for the first time...

 

She was and is wonderful.  I miss you baby girl.  I miss you so much.

 

Note: Edited this a bit Sunday @ 7:18pm, wrote it quickly earlier before church today… made some corrections and clarifications.  God bless…

It’s been a mixed bag week for me, but a fantastic ending.

A year ago we had my parents over for Easter, coloring eggs with them and the boys.   Kim and I chose that moment to tell them that we were pregnant.  She wrote on some eggs in white crayon so that when grandma and grandpa pulled the eggs out of the dye they said the following:

Baby Dec 2011

Everyone was excited… we had no idea what was to come.  We invited all our neighbors over for an Easter Egg hunt and we told them as well, another kid coming to the neighborhood.

Fast forward one year.

Thursday

On Thursday during service (Maundy Thursday) I started to dwell on the fact that Alexandria wasn’t with us.  She wouldn’t get an Easter basket, run around and find eggs, meet the Easter bunny, have an Easter dress… you name it, I thought of it.  And I lost hold of it, feeling tears stream down my face.  Thankfully the church was darkened.  I bolted with Aden out of the back of the church at the end of service as fast as I could to find a place to get a hold of myself.  I felt like a fool, embarrassed because of my grief, and that I’d allowed it to overflow where we were.

Friday

I was fearful that’s how the rest of the weekend would be, but it was not.  During the Good Friday service there were four “wash” stations setup throughout the church.  As part of the churches series on learning about Christ through all of our senses we were offered the opportunity of ”touch”, to wash each other’s feet as Jesus had washed those of his disciples (John 13:1-7).  Now, I’m not one for having other people touch my feet.  I even leaned into Kimberly and said, “I don’t think I’m doing this.”  As almost on queue Aden stood up, grabbed my hand, and started pulling me over to the area of the back of the church were one of the chairs and bowls of water were.  He dropped to the floor and started ripping his shoes and socks off, looked up at me and pointed to me, then to my feet.  He may not understand many things, but somehow he knew what had to be done here.  He wanted my shoes and socks off and he wanted them off NOW!  As I took off my shoes and socks, Kimberly, smiling touched my arm and leaned in and quoted a previous sermon, “..unless you have the faith of a child…”.  It was in reference to Matthew 18:3 “I tell you the truth, unless you change and become like little children, you will never enter the kingdom of heaven.”

I got the message:  Stop.  Let go.  Take this experience in.

Aden allowed another church member to wash his feet, which stunned me.  Here’s a boy who doesn’t like to be touched by anyone allowing someone he doesn’t know well to touch his feet.  I then sat down and he washed and dried my feet.  I in turn washed Kimberly’s. 

I felt better.  I felt burdens lifting.

Saturday

The following morning, laying in bed, I grabbed a booklet that Pastor had given me the day Alexandria died.  It’s called ”A promise of life”… it was sitting on our bedside table.  I had not yet opened it, probably as a part of my resistance to confront my grief, even my anger at God.  I read through it and it was very good.  A few pages really stood out, including part of one about accepting God’s answer:

“God’s wisdom, His grasp of your situation, is unquestionable.  His love is not dependent on the size of your faith or the fervency of your prayers.  His love is.  It always will be.  Open your heart to the healing God chooses — peace in place of bitterness, calm in place of fear, hope in the face of death.  Open your faith.”

An accompanying verse:

Three times I pleaded with the Lord to take [this burden] away from me.  But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.”  Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me.  That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties.  For when I am weak, then I am strong.“  – 2 Corinthians 12:8-10

I’ve had some sad moments this weekend, but I feel God’s presence again.  I feel very blessed to have the church and family I have.  Thank you Lord.

 

 

 

 

Alexandria just born...

Stephanie and Alexandria

I didn’t sleep much while Alexandria was here, but I vividly remember everything about her.  Her eyes, nose, wonderfully floppy little ears…  Kim’s favorite was when she would get “wrinkly forehead”.  When she’d stretch or look around her forehead would wrinkle, it was very cute (my favorite picture on the first page shows this).  The faces and names of everyone who came by and brought food, prayers, gifts, helped us at church, held us up, however…  much of that is a blur.  I feel guilty at times about that, I am so hopeful that I conveyed the gratitude and thanks to everyone as I saw them.

You can never know how much what each of you did meant to us.  Kim and I were given a gift that can never be repaid.  We would never have had the time we did with Alexandria if it hadn’t been for all of the help, the meals, the advice from Kim’s doctor, our friends, our family, and many people who reached out and helped without knowing us well.  Once, Kim and I went to an Advent service and all of a sudden she disappeared.  I couldn’t find her anywhere.  The ladies at her bible study pulled her into room and prayed over her and Alexandria, showered her with gifts and food.  It happened right when it needed too.  We were so exhausted that night, we almost didn’t even go to church…  but something whispered into Kim’s soul and pushed us out the door.  We so needed that.   Visits to Kim’s OB were much the same way… her doctor seemed to know what to say, how to comfort when we needed it, not only of Kimberly but of me as well.   The people that openly embraced me when I just couldn’t hold it together anymore….  So many people… how to ever let them know how much they meant?

Gabriel and Alexandria

Gabriel and Alexandria

God revealed himself through so many of you in her short life.  Thank you to all of you.  Those we saw and those we did not see.  For all of the people who prayed for us throughout the world, who walked this journey with us. 

Aden Kissing Alexandria

Aden giving Alexandria a kiss...

She left us 2 months ago.  Thank you for helping make her 50 days so special, so perfect, so filled with love, care, and joy.  You all made a difference.

Alexandria at her 1 Month Birthday

Alexandria at her 1 Month Birthday

In Christ,
Douglas

 

I am finding that my grief comes in cycles and has triggers.  Saturday mornings are difficult for me, hell the whole day just bites.  I wasn’t sure it was normal for me to feel that way, to grieve that way.  I almost felt like I didn’t have permission to feel that way, as strange as that sounds.  Either way, the day is just a reminder.  This past week someone else in my Trisomy 18 parents support group mentioned that they have that feeling, to which I immediately seconded…  soon I learned there were many other parents who had the same thing.  Those that were earlier on in the process, like me, found the particular day to be a problem every week.  Others, as time moved on, found it became less and less… just the day of the month.  It’s comforting to know I’m not insane… or at least no more insane then I usually am.

When Alexandria was born Gabriel went down with his grandparents and purchased a “Baby Girl” balloon from the hospital gift shop.  It survived the trip home.  It survived all three boys batting it around the house.  It eventually found it’s way into our kitchen.  He bought that balloon on December 17th…  It’s March 31st and it’s still up… but today it began to struggle.  Kim and I were sitting in the living room talking when she noticed….  “The balloon is starting to come down.”   “I know.”  I didn’t bother turning around, I had seen it earlier…  Watching it for a while she said, “It’s a real fighter.”  I thought about how much Alexandria fought, how much of a fighter she was… tears began to well up in my eyes…  reading my mind Kim looked me in the eyes and said, “Alexandria fought so hard to stay with us too.”  “Yes, she did.

All good things.

 

 
Alexandria, Douglas, reading I love you all the time, d50

Douglas reading to Alexandria (5:30am)

Ethan has begun to speak a lot more in the last few weeks.  His baby babble is just starting to map to English and he really enjoys having books read to him.

Sitting in my office this past week, with Aden and Gabriel were sitting at my desk playing on PBSKids, I stared out the window at the area that would soon be our garden.  Another one of those dreams, having a garden, something to teach the kids… something to teach Alexandria.  A chance I won’t ever get.  Ethan walked up to me, “book book book”.  I didn’t turn from looking outside right away and he became insistant, “BOOK! BOOK! BOOK!”.  “Ok,” I said, as I turned my head.  He was holding, “I Love You all the Time.”  The last book I read Alexandria.  It’s a book all of the kids adore.  I thought I put that book away.  I took it out of his hands and set it on the table next to us, hoping he’d lose interest.  He didn’t, he scrambled up onto the couch, grabbed the book, gave me his mad stair, “BOOK!!”  He flopped down in my lap.  I read it to him, but could not contain my emotions.  I started crying on the second page.  He looked at me with those big blue eyes, not understanding, but still kept turning the pages.  I continued to read.  Gabriel, got up from his seat and walked over to me… he started to pat my arm gently and say, “It’s gonna be all right.  It’s gonna be all right…  I miss baby Alex too.”

Ethan mimicked him.

I have such good boys, but I feel so bad that they have to deal with a father like me.  I should be the strong one, but I am so terribly empty.  I’m haunted by wishes.. I wished I’d done this before she left…. I wished I’d taken more video.

I wish she was here.

I took her crib down tonight.  I knew I’d never be ready, and I wasn’t.  But it was time.

 

A few days ago our video of Alexandria’s life was posted in a trisomy 18 facebook group.  We received a few comments on YouTube and as I began clicking on links here and there.  I stumbled upon a few videos from a family that was in the midst of having a child with trisomy 18.   Their I left a comment on one of their videos letting them know that I was praying for them.  A few days later we received a comment on our website from Aleisa with an interest in talking to Kim and I.  We exchanged a few e-mails and Tuesday night Kim and I went over their blog (http://iwillcarryyou.wordpress.com/).  Their story is very inspiring and many of the things they talk about on their blog are things Kim and I thought and felt.  I’d wish their blog had existed when we were going through all of this, I know it will help people.

Kim and I spoke with Aleisa and William last night for an hour and 40 minutes over the phone.  It was a great conversation and they are incredible people.  We shared many of the things we experienced with them and answered their questions as best we could.   I remember being where they are, and much of what they said were things we felt and feel.  I hope the information we gave them is helpful.  I pray that God will grant them time with their little girl.

It was a healing moment for me.   Talking to them, sharing Alexandria’s life, really made me feel better.  I hope we can keep in touch.

Side note:  I had them review this post prior to making it public, to make sure they were comfortable with me mentioning them.  We’ve been given permission to share their story and their blog (referenced above).  They are also hopeful that their story will help others, and I am sure that it will.

 

 

She left us a month ago.

Mid week this past week we met with Jessica and Dawn from hospice and I couldn’t stop crying.  It was the first time they came to see us at the house since she passed and it was as if every wall I’d carefully built to hold myself together just crumbled.  I’m glad that we saw them though, it was good to see them.  They told us that our pediatrician has asked the head of perinatal-hospice to speak at a conference of family practice doctors.  It’s good to know the existence of the program is being spread so that others can be helped by HoM.   The last few days have been rough for me.  I’m not handling it well.  Both of them could see that, I couldn’t keep the curtain up to hide it in front of them.  I can hold it together for work, I can put on the good show, most of the time.  It’s not a good distraction any longer though.  There are times it’s unbearable to be in the office. Getting up, getting dressed, brushing my teeth seem pointless.  But, I have a family that depends on me, and two mortgages to pay.  So I get up.  I brush my teeth.  I go into the office.  I hate it.

I look at pictures of her… and I can feel her in my arms.  I can feel her weight, the softness of the blankets, her smell, her sounds.  No matter how much it hurts though, no matter how much I want her back I won’t get her back.

I think that many of us hope that when we pass our loved ones with be standing there, waiting.  They’ll hug us, love us, and walk us into heaven.  For a long time I’ve hoped my mother will be waiting for me.

I’m not hoping for that anymore.  I’m not even praying for it.  I’m not afraid of death.  I’m not even concerned with the pain of dying anymore.  I’m praying that God will put me back there, back to February 4th, 2012.  I’m praying that he’ll put me there, so that when she dies I’m waiting for her.  I’m there to pick her up out of my own arms.  I don’t want her to be afraid.  I want her to open her eyes in the afterlife and I’m smiling, arms open, and will carry her in my arms into the next life.  It’ll be like she fell asleep and awoke in the most beautiful and comforting dream with me still holding her.

I hope he grants me that prayer.  I want nothing more in this world or the next.

 

Today was an ok day for me.  Work and other situations kept my mind occupied.  I spoke with a friend, Scott, about Alexandria and we talked a bit about her story.  It was good to talk about her in a happy way, we talked about how miraculous it was to have her start breathing after saying the Lord’s prayer.  That moment was incredible, and I play it over and over again in my mind.  It was a great moment.

I almost called him while we were in the delivery room, right before she was born.  He’s a photographer and a few weeks before she was born he showed me some of his work and he offered to take pictures for Kimberly and I.   It was a very nice offer, but we’d already setup to have Whispers be there.  When their wasn’t anyone to take photographs and they weren’t sure they could get someone in time I was about to phone my boss so he could find Scott and ask him to come to the hospital.  I was taking my phone out of my pocket to make the call when a nurse came up and told us that a photographer had arrived.

It was good to share a moment about her life with someone, especially one of my favorite moments.

Kim and I received a bill specifically for just the NICU doctor being in delivery today and after she opened it she said to me, “Hey, after insurance it cost us $20 to pay a NICU doctor to witness a miracle.”   Best $20 we’ll ever spend. :)

 

 

 
Alexandria and Me, 4 days old

Alexandria and Me back when she was 4 days old

It’s 4am and I am in such horrible pain.  Overwhelming waves of grief, sadness…  It’s difficult to think, like a massive thunderstorm and the sound of the rain is utterly deafening.

I want her back.

I want to hold her.

I would give anything to feed her again.  To be up just calming her down, holding her hand, playing with her toes.  She loved sleeping right under my chin… I’d shave a lot so it’d be smooth and comfortable for her.  I’d lay on the couch all night and listen to her breathe.  Rub her back when she’d stop.  Tell her about her mother and I.  Tell her how glad I was that she decided to stay.  How wonderful her blessing was… how much I cherished being with her… Being tired didn’t bother me.  People didn’t think we could keep it up but I didn’t give a damn.  I loved her and love her and would do anything, ANYTHING for her.  We never put her down.  It was so hard to put her in that casket.  It was so hard to actually put her down, to let her go.  I can’t let her go.  I still can’t let go.

Two weeks and change… and it’s unbearable tonight.  I was doing so well.  I hadn’t cried hard in a few days.  I was able to work.  I can barely breathe now.

I want her back.   She’s not coming back.

Please Lord, let me know she’s ok.  Help me through this.

 

 

It’s been two weeks and I still can’t sleep.  I still can’t write.  I have a post for the day of the funeral and one the day after that still haven’t really been finished.  I flushed out some notes, basically sentences here and there… maybe I should just post them as-is.  Maybe then people can see how completely scatterbrained I’ve felt.

We went to small group for the first time without Alexandria this past Sunday.  At the start I was overrun with emotion.  I’d always had her in my arms, held her while we ate, etc.  My arms were empty.  I had to step away from everyone and pull it together.  I can’t stand falling apart every few minutes in front of everyone.  I feel weak.   That’s the kicker isn’t it?  I work hard to make sure Gabriel understands that it’s ok to cry, I cry in front of him, I tell him it’s ok, I share my feelings around him….  but put me in a public setting and I’m blanketed in shame.  I feel like I’m burdening everyone.  Tack that on to worrying that my losing it makes it hard to support Kim and you’ll see a never ending cycle of guilt and pain.  It’s comical and pathetic all at the same time.

But we did laugh that night.  We laughed.  For a few moments we stepped out of grief.  I don’t remember why or about what, but who cares, we enjoyed a light moment in life with friends.

I shared some of my problems answering Gabriel’s questions, especially his question about Heaven.  The next day one of our small group members showed up at our house with a book for us to read with Gabriel…. such incredible people.

To start the first “regular” week off Kim, Aden, and I all contracted Ethan’s flu.  I had the entire living room covered in plastic tarps to keep Aden under control, Kim kept Gabriel and Ethan on the second floor.  I just want a nice long boring break.

Went to work this week.  Had lunch with the same friend who had told me he was afraid I was unprepared for Alexandria’s death, that I wasn’t facing reality.  We talked a good bit and he thinks I may want to talk to a doctor about my depression.  I think I’m doing better, at least better then last week.  I’m not one for pills.  Work has been a good distraction, for the most part.  It can be difficult to concentrate at times, others it gets my mind off things.

I don’t know why, but after putting the boys to bed last night (Friday night) as I walked down the stairs I thought I had to take care of Alexandria… for just a split second.  It had become such habit…  That was a hard hit.  Kim said she knew how I felt, that it was something we did for so long…  

I had some horrible nightmares this week when I did sleep, nightmares centered around her after she’d passed.  I’d like some regular dreams, nice dreams, dreams of holding her and taking her to church. 

Kim and I spent some quality time together after the kids went to sleep tonight.  It’s important to stay close, talk, breathe.  Always remember to breathe.

 

 

 

 

 

We had 50 wonderful days to spend with Alexandria and I captured many of those moments on film, and I took enough pictures that Kimberly called me “the daddy paparazzi.”  I put together a video of many of the moments and people who shared the journey with us, with her.  It’s hard to believe that it was two weeks before I was comfortable allowing other people to hold her, so worried about how fragile she was… but she just had to be shared.  The video begins with her birth and baptism and follows the timeline of her life, day by day.  Below is an updated copy of that video, it’s best watched full screen but with 480p quality.  I’ve found the youtube HD quality setting lags a bit  (click on the snowflake looking icon in the lower right-hand corner after it starts playing):

 

 
Alexandria, Gabriel, 12/22/2011

Gabriel making sure Alexandria can see him. (12/22/2011)

We received a post-card junk mail from the florist down the street today in Alexandria’s name telling her that she’d recently received flowers and it included a 10-20% off coupon.  I drove down their store and asked for a manager.  I thought I could keep it together long enough to tell her why we’d no longer like to receive junk mail in her name… but I couldn’t.  I wasn’t mean, I just explained who it was addressed too, that she was gone, and through tears that we’d no longer like to receive advertisements addressed to her…  She (and I think half the staff) started to cry as I left.  I know it wasn’t their fault, I know it wasn’t intentional, but you think there would be an option to mark what delivers are for and when it’s for the deceased those names/addr would not get into their advertisement mailing computer.

Worked on finishing up a new version of the video I made for her funeral.  This one will be for her website.  Added some video of her, and some pictures from the funeral.

I could watch video of her today and smile.  I still cried a good amount.  But I could smile.  I could get through a few without crying and just smiling.

Gabriel is beginning to use Alexandria to stall at bed time…  He’s a smart little bugger.  Not sure how to nip this though… don’t want to encourage him to use her to manipulate for time, but also do not want to hinder him opening up and talking about it.

Tomorrow is our first church service since she’s been gone.

 

(Written on the day of Visitation, but slightly edited and Published two days after funeral, trying hard to get up the energy to do this…)

It was a long day.  My brother, his wife, and their twins arrived late the night before.  The kids had trouble adjusting to the trip from Chicago and cried a few times during the night, I felt bad for them.  I, of course, was awake staring at our ceiling.  We gave them Gabriel’s room and Gabriel slept in our room in a “tent city” he’d created which included a “living room” and “bedroom”.  What he wants, within reason, for now.

So, funny story:  I finally give up and get up at 4 in the morning or so and decifde to just go downstairs and work on Alexandria’s video for the funeral.  I get downstairs and it’s pitch black, but I hear the telltale snoring from the couch and figure it’s Michael with a twin on him that he finally got to sleep.  I walk over to my office, open the door, there’s a pack-in-play in there.  YIKES!  Close the door.  They’d placed one kid in there to keep him happy and away from everyone.  Damn.  Understandable, but damn.  So I walk out to find my laptop, but it’s been moved and I couldn’t find it in the dark (probably to be kept away from the kids).  Damn.  Understandable, but damn.  I decide to just go into the bathroom downstairs, open the door, and there’s a pack-in-play in there with the other twin!  Doh!  Shut the light off and leave quickly.  I immediately thought, “If I go out to check the mail, what would I find?”  I was at least glad they (Mike and Lisa) were able to separate the two so they didn’t keep waking each other up and were able to get some sleep themselves. :)   Found my laptop and began working on editing the prior days’s writings… didn’t get to the video until after everyone was awake.

I spent all morning putting together the video for Alexandria’s funeral.  I’m hopeful it shows how great her life was, how many people brought her joy.  Not just how many people she touched, but how many people touched her.  How many people gave Kimberly and I hope and time.  Kimberly and I wanted to put the days on each of the pictures to mark the progression of her life, but I just didn’t have the time.  I had Michael (brother) review it and he said to not change a thing.  Pastor Nick is going to meet with me after the visitation tonight at the church to make sure the video plays on the monitors at church, it’s so nice of him to take time out to do that for me.

Went by the funeral home to get more picture boards for Kim.

Went to several places around 2:30 and bought them out of papers.

Midland Daily News, as usual, screwed up and didn’t run her obituary today.  That’s 3 for 3 now; the spelled my name wrong in Grandpa’s obituary in 1991, they didn’t format my mother’s obituary in 2004 so it was all broken up in mid-sentences, and now they didn’t run Alexandria’s obituary at all.   Kim says to me later, “Well, it isn’t called the Midland Daily Mistake for nothing.”  Isn’t that the truth.  So now her obituary won’t be run in our home town the day before her internment, or even the DAY of her internment.  What a complete let down.  If there is one thing, ONE SMALL THING, a newspaper should take care to get right, it’s the freaking obituaries.

BTW, GR Press, nice color picture, all one unbroken column both days, well done.

Visitation

Literally a 3 hour tour.  So many great people showed up.  One in particular was a gentlemen (name withheld for privacy) whom I’d met several months prior who lost a daughter many many years ago.  His compassion and story moved me so that one day I’d searched him out at church so he could specifically hold Alexandria.  I kinda felt like someone was telling me, “Find him, he needs to hold her.”   So many people.  Couples that have lost children.  I don’t know how they handled being reminded of what they went through by coming to support us, but what strength to see and it gave me hope that at some point this overwhelming pain will be manageable.  Friends.  Family.  I was all cried out after the two hours.  Just when I thought I was done someone would say something and I’d fall apart again.

At the very beginning Kim and I were standing near Alexandria’s casket and a small line was forming near us.  Gabriel picked up on that and as people began to walk in, he started telling people, “You need to get in line!!!”  I’m getting my public education money’s worth, the boy knows lines and their importance.  Kim and I heard him say that and it was a good reliever, but I told Kim we should probably move down a bit so people could mingle around and not be herded by our 4 year old. :)

Everyone said how great parents we were to her.  I kept telling people we got the better part of the deal, and that’s absolutely true.  She was such a great blessing to us, I feel like she gave us so much more then we could ever give her.  I have this hole feeling I didn’t do enough for her.  Three things I didn’t think of until it was too late for her bucket list:  Passport, Shoes, Barbie.  Didn’t realize the Barbie thing until today.  I was walking Gabriel through the store and saw some, it just crushed me for a minute, what father doesn’t get his daughter a barbie?

50 days wasn’t enough.

I was very moved at the number of co-workers that came out, even one that just had triple neck-bone surgery days prior.  My uncle Bill commented, “I think half of Meijer showed up for the visitation.”  :)   What a great group of people.  I’ve never had a more supportive employer, they’ve really been outstanding.

After everyone was gone we went to say goodbye again to Alexandria.  They did a very good job making her look good.  I remembered the funeral home saying something about putting ointment on her ears to “help”, wondered what they meant, so I touched her ears.   Mistake.  I’ll just say they were “different”, they weren’t (understandably) the floppy little ears they were days before…  I wanted to make sure her ring was on her finger, but afterwards wish I had not.  Her ring was on, but her hands had not been “prepared”.  Everyone else who had died in my life had their hands clasped at their chest, but hers were at her sides covered by her blanket…. so I checked for the ring.  It is a tough call to get closure to know how much time to spend with them after they go.  I don’t want her “being dead” to be the images burned into my mind.  I also need that finality.  As insane as it sounds, the day after she was gone, it was almost as if they were was a hope that it was all wrong, they’d call because she wasn’t really dead and we could go get her.  But she’s definitely gone.  My mother told me several times when I was young that if she ever died she’d want my sister and I to see her at least once without anything done to her by the funeral home, so that we would know she was definitely gone.  She felt kids needed that finality, and part of her career as a nurse I know she’d seen many kids who were denied the chance to grieve.  It was very important to her, probably one of the reasons I’m so careful to make sure Gabriel is included, understands, and does see her, but glad she “looks” somewhat like she did while she was alive.

I was concerned that an open casket would be a mistake.  It wasn’t.  Gabe walked by her a few times, he needed to know she was really gone.  I think seeing her changed helped.

We took Aden up a few times, explained she was gone.  I think he understood.  Something in his eyes told me he understood.

They had a good room the side for kids to watch videos, glad it was there, really helped the kids.

For visitation at the church Kim and I will go alone, the kids will join us for the funeral.

Gabriel told me today in the car again that he was happy, not sad.  He didn’t like crying.  He told us on the way to the funeral home that Ethan was sad that baby Alex was gone… projecting his pain onto him I suspect.  A co-worker with a psychology degree brought that up too, which I think was kinda the confirmation I needed to know we should watch it closely.  Gabriel did say during the day he wanted to go to the funeral home because he hadn’t seen baby Alex in a long time.  He was so close to her, he misses her, it is so hard to see his difficulty expressing it.

We had some nice moments at night with family all sitting around the dinner table talking and eating very good chocolate brought by Uncle Bill and Aunt San.

 

 

I wrote some of this on February 14th, 6 days after the funeral, and more as the weeks past.  I should have written more while it was clear in my mind, but it was too difficult for me to do so.

————–

Alexandria's Church Banner

We woke up and the house was buzzing with people, which was nice.  The busier it is the the less I concentrate on losing Alexandria.  Kim and I needed to be at the church early for the visitation.  As we were leaving Gabriel ran up with desperation saying he wanted to come with us, I wasn’t about to argue with him, not today.  We got him into the car and made it to the church.

When we arrived no one from the funeral home was there yet, but they pulled up shortly after we did.  I walked out to their van and carried her casket from the van into the church.  When we assembled in the front area of the church, Pastor outlined the best way to position things in the small entryway.  We placed Alexandria’s casket to the left near the entrance to the chapel and setup the picture boards around the room.  A good friend of ours pasted some pictures on a large “A”, which we setup on a table on the other side of the chapel entrance.   

Phil, one of my best friends, and Marlene, a friend of both Kim and I, were the first two people to arrive.  Because of work projects and everything going on with Alexandria I haven’t seen a lot of Phil in the last few months and it was good to see him.  It’s amazing the weight that can be lifted off your shoulders when the presence of friends is near.

A lot of people came, many friends, church members, and even a woman who had read our story on the  baby-center website that Kim had posted on.  The funeral was beautiful.  Pastor’s message was great.  He and I have spoken a few times and it’s interesting to have his perspective on her birth.  He did not know that Alexandria wasn’t breathing when he entered the room, he only knew he was told by the staff to hurry.  I can still feel myself holding her hand while we prayed, and her first breath after we said Amen.  It is so hard to accept she’s gone.

After the service many people had to leave, only about half that I had expected to stay for the lunch did stay.  I know that many people had to get back to work, or home to their kids.  The food was very good.  I felt rushed though, knowing that we had to leave for the cemetery in an hour in order to make the timing deadlines with the cemetery.  I spent a good amount of the lunch time trying to get loose ends tied up so that we would make it to Saginaw on time.  During lunch Gabriel asked to see Alexandria again.  I took his hand and we walked through the church and into the chapel.  I unlocked her casket.  He looked at her briefly, spoke a little about her, and said goodbye again.  It was hard to know what he was thinking, he’s so quiet, but I knew that when he was ready he’d talk.  We returned to the lunch area where he quickly disappeared to talk to… well to just about everyone. :)

Alexandria's Casket

As time got close for us to leave, Kim and I went into the chapel alone.  Finality began to sink in.  We taped photo’s of the family into the top of her casket and decided to say our final goodbye’s there in the church.  We did not know what the situation at the cemetery would be like, but we did know we would not get the privacy the church afforded us.  I made sure her baby ring was on her finger, and her cross was secure around her neck.  We prayed, we cried, and then prepared to leave.  Aunt San and Uncle Bill’s flight was leaving in a few hours, so making the trip to Saginaw wouldn’t be possible for them.  They very graciously took care of assembling all of the flowers and food and getting it back to the house.

We put photos in the top of her Casket

Gabriel asked to ride with Kimberly and I to the cemetery.  I initially didn’t want him to ride with us, I wanted to talk to Kimberly about what was going on in private.  However, after looking into his eyes I could tell this wasn’t a request that should be put off, and we all piled into our car.  I realized a few minutes into the trip he was going to have questions and Kim and I were definitely the two to answer them.  He had some questions about why she died, where she was, etc.  We continued to tell him that she was very sick, but not in a way that he or we could get sick…  and that she was in heaven now.

Gabriel saying goodbye at the Cemetery

When we arrived Gabriel told us he wanted to see baby Alex one more time.  I took him to the van where her casket was, took the key out of my pocket, unlocked, and opened it.  He paused for a moment and then said to Kim and I, “I need to pray over her.”  He laid his hand on her head and prayed his favorite prayer, “Come Lord Jesus be our guest and let these gifts to us be blessed.  Amen.”  It was a surreal moment, one I won’t soon forget.  He’d seen Pastor pray over her a few times (other prayers obviously), that clearly sunk in.  4 years old going on 50.

We said goodbye, closed and locked her casket, and I carried her to the grave-site.  Pastor Rob gave the graveside service. There were a few people there from Midland, but not many.   We later had the feeling many people felt the graveside service was family only, we probably should have made it more clear to people that it was open to anyone.

After the service I handed her casket to the cemetery workers and they laid her to rest in her tomb.  Kim, Gabriel, Aden, Meghan, Robby, and I all dropped flowers into her grave.  Gabe asked to drop another one because his first went into the dirt and not on her tomb. Anything he wanted…

 

Lowering her Casket

We each dropped some dirt onto her closed vault, and then one of the cemetery workers and I began to close the grave.  After the first load of dirt I asked Michael to help and he and I closed the grave together.  It is very much a closure thing for me, to close the grave myself, much like building her casket myself.  It was my role, as her father, to take care of her from cradle to grave.  Today many people shy away from this part of the cycle. Some don’t even go to the cemetery when they bury their loved ones… for me, putting the dirt on the grave myself, is very important.  It may sound morbid to some, but when I closed her grave there was a peace that came over me, a knowing that I’d done all that could be done. We loved her, we gave her everything we had, and now I’d seen her home, that I’d made sure she was safe.

Michael and I closing her grave

 

As we were closing the grave Gabriel asked, “Who’s going to die next?”  We told him hopefully no one will die for a long long time. 

Afterwards I just sat down next to her grave and cried.  It was done.

 

 

Been working on posts for the first few days after her…. editing what I’d said, adding detail.

Still can’t sleep.

The house is filled with family though, so it feels… less empty.  It’s so nice to have them all here.

We tested the video Kim and I made for her funeral out at church last night after visitation, but it skipped once… hope it doesn’t do that today.  I hope everyone sees that it’s not only the people that she touched that is such a miracle, but also all of the people that touched her life and ours that made this journey.  So many people who helped us, it’s impossible to thank them, to repay their gifts.

At some point I’ll finish yesterday’s post…  but need to try to get some sleep… the rest of today is going to be hard.

 

We let Aden go to school, good to keep him in his pattern and he wanted to go.

We asked Gabriel if he wanted to go to school, he waffled a few times during the day, announcing he didn’t, saying he did… he eventually decided to go.

Got there, he told his teacher about that we were going “somewhere” tomorrow, but he couldn’t remember the place… he struggled for a bit… I knew what he wanted to say, and when it became clear that it really bothered him I said, “the funeral home?“  “YES!  The funeral home cause baby alex died!”   She said something to him, something good about talking about it later if he wanted too…  I was temporarily blinded by emotion to hear her words.  I felt compelled to explain to his teacher he really did want to come to school…   She understood.

Gabriel began asking question after question after question today, which is natural.  We were patient and answered them as best we could.  He asked me “What’s a funeral?!?” in one of our discussions and the following just flew out of my mouth, “A funeral is like a church service where we go to church and praise God for the days we had with Alexandria, we sing some songs to her, and then we tell her goodbye.”  It was weird, because I hadn’t really thought about what a funeral was, what I was going to tell him… it was like someone else just took over “Here, let me answer his question for ya…”  After I said it I thought to myself, “Hmmm, that’s a pretty good answer, wonder where that came from.”

“Where is heaven?”  “I’m not sure.“  Not sure I’m ever going to have an answer for that one.

Several times throughout the day he told me how he wasn’t sad, how he was so excited she came out of momma’s tummy.

This was the first day I’d gone without physically seeing her.  I stopped by the funeral home with some cards to see if they made them like they did when my mother passed, and they are going too.  I thought about asking to see her… but something told me not too.

 

I can’t sleep.  I’ve been up most of the night.  Kim and I slept in our own bed tonight and the house doesn’t seem like ours anymore.  It seems so empty.  We laid there talking about for over an hour in the dark, remembering how wonderful she is.

At 3am I came downstairs, I couldn’t lay there anymore staring at the ceiling.  There is no comfort here.  It is so cold.  The house is so empty without her.

Worked on the post about the day before she passed on the blog to pass the time.

Everyone “got up”.  Gabriel said a few times that he was sad that baby alex had died, and we immediately told him we were sad too, that it was ok to cry, etc.

Went to the funeral home, made preparations, including all of the paperwork for burial, visitation, and service times.   The funeral director, Bob, who helped us had also lost a child many years prior.  He was extremely good at his job and very helpful.  Found out about finger print stuff.  Gave them the working obituary and had them add the dates/times to it and send off to the newspaper.  GR Press is now only delivering on Sundays, Tuesdays, etc… so if we had the funeral on Tuesday it wouldn’t even make the paper.

I couldn’t stand to eat dinner at the dinner table.  I did it anyway, but for most of the time while she was alive one of us ate with the boys while the other held Alex and ate in the living room.  It’s terribly ironic that I thought it was difficult to eat with her, squirming around, turning my head to the side so no food would fall onto her…  eating without her in my arms is much more difficult, it’s almost unbearable.  Sleeping without her is just as impossible.

 

 

(Written at 4am the day after she was gone with editing the next few days)

Alexandria holding Doug's Hand d50

Alexandria holding Doug's Hand (4:45am)

Alexandria had a rough Friday night, episodes throughout the night where her heart and her respiration would crash.  It hurts so much knowing she’ll never fall in love, she’ll never get proposed too, never married.  I so wanted to walk her down the aisle… that sounds so selfish now, but it’s been a dream I had.  Kim and I pushed the couches face to face together so we could lay next to each other, but still have the safety net of the couch backs to keep ourselves from rolling around if we fell asleep.  We traded her back and forth during the night.

Around 4am she and I danced around the living room for the last time.  She didn’t step on my toes once.  I could barely hum the tune through my tears, all I could think about was how it was the closest she and I would ever get to a father-daughter dance.

Kimberly kissing Alexandria d50

Kimberly kissing Alexandria (5am)

A little after 5am I began reading books to her, “One Duck Stuck”, and my favorite book “I love you all the time.”  I had Kim video tape me reading to her.   Her episodes were getting more frequent, but were spaced about an hour to 45 minutes apart.  I decided to take a quick shower after one before 6am.

Around 7am the boys were beginning to wake up and I knew that Gabriel was not going to be able to handle seeing her have an episode.  It would scare him at best, but more then likely give him nightmares for years to come.  Her coughing and jump-starting back, especially as Kimberly and I cried and said how much we loved her every time it happened would be difficult for us to manage with him.   We talked about where we thought would be best and decided that taking her upstairs would probably not be the best option.  Our bedroom upstairs would be the only place we could take her, and how would we handle the memory of her dying in our bedroom in the years to come?  We moved one of our couches into the office on the first floor, somewhere we could go and be secluded behind closed doors, but allow the kids to come downstairs and watch TV, play with their toys, etc.

Alexandria wearing her cross d50

Alexandria sleeping, wearing her cross (5am)

Alexandria, Douglas, reading I love you all the time, d50

Douglas reading to Alexandria (5:30am)

She had a few episodes between 7 and 8am.  By now her pain was managed enough that she did not appear to be in any discomfort, but it was definitely stressful for her every time it happened.  It is such a difficult thing to know that time is short, that the day is at hand, and this is all you get.  This is it.  But you push that back and hold her and love her and let her know how cherished she is.

She had a peaceful time for about an hour between 8:00 and 9:00am, but then had another, but brief, episode.  Her heart dropped into the thirties and her respiration was difficult to measure.  She then bounced back and held the 120sbpm and 20-30Brpm for a while.  She seemed good. I was almost wondering if this was a good rally that might last.  Kim decided to take a quick shower in hopes to get in and out quickly prior to the next episode.  I laid down with Alexandria, and held her on my chest as I had for the last 49 days, snuggled in her “Daddy’s Sweetheart” onesie, wrapped in a blanket, snuggled up close.  Around 9:45 she began to have an episode, but her heart went down pretty far, then began to shoot back up, then down.  It wasn’t a pattern I had seen with this quick a change.  I called Gretta and asked her to ask Kim to hurry, figuring she was probably done in the shower and could just come downstairs.  Her heart dropped to 19, her breathing stopped.  I got her up quick, grabbed the monitor and walked into the kitchen, and asked if Kim was on her way.  Gretta told me she’d told her to hurry…

I paused for a second, considering our earlier conversation….   if this was it, and I take her up there, would Kim be mad?  I figured she’d be more angry if she wasn’t there, so I went upstairs with her.  The episode got worse, I knelt down on the floor and told Kim to come out, that she was having a very bad episode.  Her heart dropped to 0.  Her heart started again while Kim rushed out of the bathroom and joined us.

She died there in my arms.  That was it.  We would get no more time.  I have never felt such pain and anguish.

We cried and held her back and forth for the longest time. I stepped out of the room only briefly to call Jessica.  Jessica, thankfully, called Dawn, who showed up shortly thereafter.  Unimaginable pain.  Jessica showed up, and they both spent some time with us, comforting us, holding us together.  She died at 10:00am, Jessica did second pronouncement at 10:54am.

Found Gabriel, explained that she had now died, took him up to see her.  He asked why she was “green” (she wasn’t green, but it’s how he perceived her color at the time), why “she changed color”, and I explained that it was one of those things that happens when you die.  You don’t eat,  you don’t breathe, you don’t cry, etc.   “She went to Jesus.”  “Yes, she’s gone to be with Jesus.“  “I’m so excited she came out of momma’s tummy!”  “We were too, we love her very much, and we’re very sad that she’s gone.“  “I’m not sad.”  We didn’t press this response because we knew he didn’t understand, we’re sure he would as it sunk in.  After a while of seeing her and talking with us he stood up and said, “I’m going now.”  We told him OK, and he left with his signature, “OK, See you later!  Have a good week!”

Found Aden, did the same thing.  I knew he wouldn’t understand, but just as with Gabriel this is also his first cycle of life.  Perhaps as others pass on he’ll begin to grasp and understand this confusing world around him.  We signed to him, “she died.”  He signed it back to us.  We signed yes, she died, and he signed OK, then immediately stood up and left.

We sat with her for quite a while.  Holding her, telling her everything we’d said while she was alive over and over.  Unable to let go.  No matter how much I wrapped her, no matter how close I held her, I just couldn’t warm her up.  She was growing so cold.

We had purchased some pottery and paints from Naked Plates and we added her hand-prints and footprints to them.  Later on we’ll add the other children’s.  We did the same with some glass Christmas ornaments as well.

I gave Alexandria the first bath she had when we came home, and I gave her the last bath now.  She hated baths, always squirming, until I got to rinsing her.  I’d get the water at just the right temperature and then gently hold her under the flow of water.  She was never as calm as when I was rinsing her during bath… I think being surrounded by the warm water reminded her of being with Kimberly.

I dressed her in one of her favorite outfits and wrapped her up tight in her blanket.  Kim and I spent some more time saying goodbye.  Around 1:30pm we called Metcalf to come and get her body.  We were told by Dawn that they would probably want to pick her up and transport her in her carseat.  Kim was very afraid that Gabe would misunderstand that and think she was still alive and just going somewhere in the car.  We decided to send her with them in her casket, so I placed it in the dining room before bringing her downstairs.

I brought Alexandria downstairs took her into our living room for one last goodbye with the boys.  Ethan walked up, “Baby.”  “Yes, baby Alexandria.”  “Baby.”  .. He smiled and he walked away.  I later told Kim that Ethan would probably be a great reminder of her in the days and weeks to come, saying “baby” and probably looking for her.

When Metcalf arrived I asked Gabriel if he wanted to help lay Alexandria to rest in her casket and he said yes.  We walked over and laid her down. We slowly closed the lid and he asked me for the key.  He wanted to lock the casket, and I let him.  I then asked him for the key back, which he surrendered.  4 years olds have such short memories and wild imaginations… we took pictures of the goodbye so that down the line, when he can’t remember, we can show him that she didn’t just disappear, that she finally did pass into God’s hands and we said goodbye and let her go…

 

Douglas with Gabriel, carrying Alexandria in her casket

Douglas with Gabriel, carrying Alexandria's casket to the funeral director's car.

 

I carried her casket out to the car and passed her body into the hands of the funeral director in the front seat.  I handed him the key, but told him, “When this is all over, I’m going to want this back.”    The key to our treasure belongs to us.

And she was gone.

Ethan and Harry watching through the window as Alexandria leaves

Ethan and Harry watching through the window as Alexandria leaves

 

 
Alexandria Kimberly Vogt

Alexandria Kimberly Vogt

Miss Alexandria Kimberly Vogt passed away on February 4, 2012, in her parents’ arms at home in Grand Rapids, Michigan being aged 1 month and 19 days.  Alexandria was born in Grand Rapids on December 16th, 2011 at 4:26pm weighing 4lbs 12oz.  She was baptized that very day at approximately 4:29pm.  In her short time here she brought her family and friends immense joy and love.  She enjoyed being sung to, hearing stories told by her Daddy, being wrapped in blankets made by her Momma, going to church, and getting up in the middle of the night.  On December 21, 2011 she attended her first church service at St Matthew Lutheran Church.  She celebrated her 1 week birthday surrounded by family who continued to celebrate with her through Christmas.   At midnight on New Year’s Eve she was kissed by both of her parents; marking her life as one lived in two separate years.  January 16th Alexandria greeted guests for her 1 month birthday with a gala event filled with family and friends who enjoyed cake and ice cream with her.  Snuggling with her parents was her favorite activity, having never slept anywhere but in their arms her entire life.

She will be greeted in Heaven by her brother, Matthew Douglas Vogt, who passed in 2006; and her paternal grandparents Dr. James Robert and Shirley Robertson Vogt.  Alexandria will be mourned on earth by her parents Douglas and Kimberly who love her dearly; her brothers Aden, Gabriel, and Ethan, all at home; maternal grandparents Harry and Loretta Toner of Midland; maternal great-grandmother Goldie Toner of Midland; grandparents Charles and Margaret Bash also of Midland; along with many uncles, aunts, cousins, and dear friends who survive her.

Memorial services will be held the morning of Wednesday February 8th, 2012 at 10:30am at St. Matthew Lutheran Church in Grand Rapids.  Visitation will be at Metcalf and Jonkhoff Funeral Services on Tuesday February 7th, from 4:00pm to 7:00pm, and one hour prior to the service at the church on Wednesday.   Interment will follow at Roselawn Memorial Garden in Saginaw, Michigan at 3pm.   Metcalf and Jonkhoff Funeral Service, Grand Rapids, (616) 940-7333, will be handling arrangements.  Memorials may be donated to St. Matthew Lutheran Church in her memory.

Her parents wish to thank Hospice of Michigan, especially Jessica Johnston and Dawn VanDerKolk from HoM, Dr. William Bush of Forest Hills Pediatrics, the labor and delivery staff at Spectrum Butterworth, their church family at St. Matthew’s, all of their family, friends, and neighbors who supported, prayed, and held them and Alexandria up during her wonderful life.  Only God could love you more baby girl.

 

Very hard night.  Many episodes.  Alexandria continues to fight, she is the strongest, most beautiful girl I have ever known.

 
Aden and Alexandria d49

Aden and Alexandria

(This was partially written the morning of her 50th day while Alexandria slept on Kim, and partially in the middle of the night after her passing)

With Alexandria’s episodes becoming more pronounced I knew it would be difficult for us to handle Gabriel and Ethan during those episodes.  I took them over to Amber and Joy’s house across the street so they could play with Ellery and Emerson until Harry and Gretta got here.  They have been such good friends and we’re very blessed to have friends that close.  Aden came home from school shortley after, but we kept him home because he’s fairly self-sufficient in his “after school” pattern.

Douglas and Alexandria

Douglas and Alexandria

After a few rough episodes we decided it would be good to let Aden and Gabriel hold her again.  I gave Aden the opportunity to hold her and he was thrilled, but decided on his own that he was done.  I went over and got Gabriel, brought him home so he could hold her, and then took him back to Amber and Joy’s.

I picked them up around 6:30pm or so, got Aden some dinner, then put all three of them to bed.

Gabriel and Alexandria d49

Gabriel and Alexandria

Gretta and Harry arrived shortley before 6pm and they held Alexandria for a while, and stayed up with us late while Alexandria had several episodes.  They seemed painful to me, her breathing would slow, her heart would slow, and she’d snap back.  When she snapped back she’d cry…  and I just couldn’t take that.  I did not want her last moments to be in pain like this.  I had forgotten how heart wrenching the episodes in the hospital were…  I called hospice and I asked them if we could increase her morphine dossage, and after speaking with Dr. B they gave us new instructions to help keep her comfortable.  There was one point near 11pm where we were sure she was leaving, called hospice to have Jessica come out, but she snapped back and we cancelled having Jessica come out.

Harry and Alexandria

Harry and Alexandria

Aden and Alexandria d49

Aden and Alexandria

 

Gretta and Alexandria

Gretta and Alexandria

 

 

 

Much has happened today.  I will fill in with more text and pictures later.

Uncle Bill and Cousin Mary came all the way from Virginia to see her and were such a blessing to have here and we are so happy they were able to meet her.

Alexandria is beginning to have small but continuing episodes.  We called her grandparents and told them it is time to say goodbye.

Douglas

 

(Wrote this during the morning of the 4th, while Alexandria had an hour long stable run sleeping on Kim)

Uncle Bill and Alexandria

Uncle Bill and Alexandria

The night of the 2nd was a pretty rough night and we had to give Alexandria morphine regularly for comfort.  Late in the day yesterday my Aunt San told me that my Uncle Bill and Cousin Mary and her children were driving up from Alexandria.  They drove through the night and arrived around 10m.  It was great to see them, Gabriel loves playing with his cousins William, Army, and Blake.  The four of them are a rambucious group, it was funny how their energy just seemed to feed each other into a frensy.  Gabriel brought up his baby (Monkey stuffed animal) that wasn’t going to die, that was going to stay with us.  He continues to try and process what’s going on…

Mary, Alexandria, Blake

Mary, Alexandria, Blake

 

Mary and Alexandria

Mary and Alexandria

 

 

Mary, Reid, Kimberly, Alexandria (skype) d49

Alexandria on her first international Skype call to Cousin Reid overseas

My cousin Reid, Mary’s husband, could not come with them because he’s on assignment overseas.  Mary had the great idea of Skyping him and Alexandria had her first internetational live conference call. :)   Didn’t think about putting that on her bucket list, but damn glad we did it.  It was good to see Reid and give him the opportunity to meet Alexandria.

Mary and Alexandria

Mary and Alexandria

Jessica (hospice nurse) called after lunch and we asked her to come out.  Alexandria had been having gas pains all evening and all morning and it was really beginning to be a problem for her.  We wanted to talk about changing her formula, and some of her feeding problems, along with the mini-apnea episodes we’d seen.  She let us know that the gas problems were common, especially at this stage, and were more then likely caused by her body not getting the circulation it needed to her digestive system.  Her body just couldn’t process the food in large quantities any longer, which was another reason she wasn’t eating.  It was part of the process of her body shutting down.  That was difficult to hear, but with the other signs we see it was clear that was happening.  We decided against putting in a feeding tube, because it would make her considerably uncomfortable, and since her body wouldn’t be able to process the food it would cause more problems then it solved.  She was hydrated, so her body was able to process enough to sustain her, but only a very small amount was what she needs now.  We began using a siringe to drop small drops of formula in her mouth every now and then to keep her hydrated.

Jessica, Douglas, Alexandria

Douglas holding Alexandria while Jessica checks her heart

I asked Jessica, with what she saw, if she felt Alexandria still had days.  She just frowned and shook her head.  I knew she was right, I didn’t think she did either.  I asked only in hopes of being wrong.

 

As the day progressed her episodes began to get more frequent, and slightly worse dips.  Mary and Uncle Bill saw her turn light purple once and were shocked at the transformation, and how quickly she pinked up after it was done.  It was the first time we’ve seen color change in her face of that maginitute in weeks.  Shortly before 4pm I called Alexandria’s grandparents and told them it was time to come and say goodbye, that we did not think she’d live through the weekend and perhaps not even the night.

Army and Blake looking at Alexandria, held by Mary

Army and Blake looking at Alexandria, held by Mary

Although they had driven all night to see her, Uncle Bill, Mary, and family had to return the same day.  :(   We were sad to see them go, but were absolutely thrilled that they were able to come and meet her.  Before leaving Mary prayed with us over Alexandra while she held her….  I hope she knows how incredibly comforting her words were.  Afterwards she said, “I can see what you mean now, about her being perfect, I get it now, she doesn’t even seem sick, and she’s just beautiful and perfect.”  Amid tears and farewells they left around quarter to 4.

Kim, Alexandria, Army, William, Gabriel, Blake, Mary, Ethan

Kim, Alexandria, Army, William, Gabriel, Blake, Mary, Ethan

 

My Uncle Bill is a wood worker, among many other trades and hobbies.  He’s one of the main reasons I took up woodworking, although he probably doesn’t know that.  He knew that I had built her casket and wanted to see it before he left.  He told me it was beautiful work, which was nice to hear.  He also thought Gretta did a fantastic job on the inside and told me to tell her so.

They left amid tears and we turned out attention to Gabriel and Ethan…

Gabriel, Kimberly, Alexandria, Douglas, Ethan

Gabriel, Kimberly, Alexandria, Douglas, Ethan

 

(This is a long note, a lot happened today, sorry for the rambling)

Ellery, Alexandria, and Joy

Ellery, Alexandria, and Joy

Alexandria had a very hard day for most of today.  She continues to be very congested and her cough sounds very rough and deep.  We had some people ask if they could come over and Kim and I decided that it would be ok.  I’m unable to verbalize that they came to say goodbye.  None of them said they came to say goodbye.  A few friends are going on vacation and behind the scenes, knowing what we all know, we know it was probably goodbye…. but never spoken.

I’m sure I’ve said this before, but we have the greatest neighborhood friends, some of them came over tonight as well.  All of them offered to take the kids if we need some time, which considering the amount of damage our three boys can inflict, is very kind.

Amber and Alexandria d48

Amber and Alexandria

Amber, Joy, & Ellery came by in the early afternoon.  Gabriel was thrilled to see Ellery. They are very close in age.  When they were leaving they offered to take Gabriel for a bit.

Side Story, Gabriel the Rock Hound:

After getting his jacket on he realized that he had all of the rocks he’d been collecting for Ellery in his jacket pockets and began giving handfuls of rocks to all three of them.  You see, last summer we went on a bike ride with Amber and Ellery down the street and back and Ellery found a few rocks she liked.  She put them in her bike, and when Gabriel inquired Amber told him she liked rocks.  Since then he’s been coming home from school with pockets full of rocks…  I come home from work and find small piles of rocks, they were on the deck for a while, laundry, you name it.  Today he finally got to deliver some of them. :)

Pastor, Alexandria, and Kimberly d48

Pastor, Alexandria, and Kimberly

My foster parents came by to visit this afternoon as well.  They are in town because my foster sister, who had a kidney transplant a few years ago, is in rejection and in the local hospital here.  If you’re reading this, she, Bonnie Bash, could use your prayers.

After everyone left, Alexandria began to go downhill for a while. Her heart dropped to around 80 bpm, at one point dropping below 70 for a moment or two.  Her respiration dropped as well, into the 20s.  She stabalized to her recent “norms” after about an hour.

I had started to write Alexandria’s obituary before she was born.  I didn’t want to write it in a state of extreme grief, I wanted to write a good portion of it while I was calm.  I opened it today for the first time since she was born.  I read a few things to Kimberly, asked her about wording on some things….    I haven’t cried uncontrollably since we brought her home…  I think because for the most part I didn’t believe she was leaving.  As I read the words I’d written, I think everything began to sink in.  The permanency of her death that we were trying to help Gabriel to grasp, began to take a hold of me.   I started to lose it.  A few moments later Pastor called and asked if now was a good time for him to stop by, that he was about 5 minutes away.  The good Lord has timing.  Pastor arrived, talked with us, prayed with us, comforted us.  He offered us the chance to offer up any prayers we had, but I knew I wouldn’t verbalize them… at least not loud enough for him or Kimberly to hear.  I didn’t want to look like a fool…  but all I kept saying to myself was, “heal her Lord, heal her, save her.”  Begging.  I couldn’t hold it together for most of the afternoon, even fell apart a bit in front of a friend from work… not good.

Around 6:30 our friends Todd and Senait came by to see her, it was good to see them, because of sickness it had been a while. :(   No fun when everyone’s kids are coming down with the one thing or another.

Todd and Alexandria d48

Todd and Alexandria

My Uncle Bill, cousin Mary, and family are on their way here from Virginia.  It will be very good to see them all.

Alexandria’s heart has begun to drop again, hovering between 80-90 tonight, getting as low as 67bpm.  While Pastor was here he asked me what I was thinking.  I know we’re blessed with the time we have, but it’s not enough time.  I need more.

 

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